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Molly Deeter-Pontius Update
Sunday, May 4, 2008
 (through the eyes of a loving Mother)

Molly is still rejecting the heart. She has a biopsy monthly and has only had one clear report.  As you probably already know, the medicine has caused the blood flow to her hips to be constricted so her hip bones have degenerated and she will need both hips replaced. 

A surgeon tried a technique called bone compression, two surgeries, seven weeks apart.  Molly hasn't noticed a difference.  She went to the surgeon Thursday and he said to wait another five to six weeks.  If she isn't better than they will probably do one replacement surgery at a time. 

My daughter Katie has moved in with the Pontius family and is caring for the whole family.  Molly can't do very much at this time and Jack is a busy little boy.  The biggest problem that they have right now is that there are two sets of stairs.  Even is Molly does get the hip implant and is able to walk without help again, she needs to put less strain on her hips so they last longer.  They can't of course afford to buy a new home at this time so we are between a rock and a hard place.  We continue to look for one story homes in Columbus but they are her dream homes at present. 

My friends continue to have fundraiser's to help pay bills.

(Back to
June 8, 2007, "An Unexpected Blessing".)   To contact by email.


 

Group Launches First Internet Registry Of Women With Pregnancy-Related Heart Failure - Peripartum cardiomyopathy (PPCM)

According to the National Heart, Lung and Blood Institute, the condition is a rare form of heart failure that affects pregnant women in the last month of pregnancy. The cause of the condition "remains a mystery," and physicians do not know how often it occurs.

Pregnant women with the condition "often go to the doctor saying, 'I'm short of breath, my legs are swollen and I can only walk a block or two,'" and are thus ignored because these are similar complaints physicians routinely hear from pregnant women.

The most recent studies of the condition suggest that 30% remain in chronic heart failure and that about 10% develop severe heart failure, require a heart transplant or die.

A Mothers Heart: http://www.amothersheart.org/PRiCELESS.htm
New York Peripartum Cardiomyopathy Study Group
http://www.medicalnewstoday.com/articles/100595.php 
 

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